About us

Welcome to the PNH Global Alliance


The PNH Global Alliance was created in December 2018 in order to share information and expertise, collaborate on common challenges and issues important to our community and leverage our combined voices for the benefit of the PNH community. The founding members of the Alliance are set out below. PNH patient organisations (or those supporting PNH patients) are welcome to apply for membership of the Alliance. Please contact us for more details. We are aware that PNH patient organisations may have limited capacity and resource and that sharing our combined knowledge is beneficial to us all. We meet virtually regularly and aim to meet in person annually.

 Chair РMaria Piggin РPNH Support

 Secretary РBarry Katsof РCanadian Association of PNH Patients

Treasurer – Angeline Jansen – Stichting AA & PNH Contactgroep






Our Aim:


The aim of PNH Global Alliance is to advocate in the best interests of PNH patients world wide through collaboration.


The founding members of the PNH Global Alliance are listed below: